August 31, 2009

I can't believe that summer is over, did we even have a summer? The news as of today, as we know it can change hourly, but as of right now at 9:30am we are waiting for Boston to send new blood vials too the 3 remaining that are a potential match for Bridge. They will have their blood drawn again and send it via fedx back to Boston. They are going to do the sensitive testing automatically so the potential donors do not have to go through all the testing that I went through. Once we know either yes or no we can go from there. If no one is a match than we either put it out there again or we put her on the waiting list. I don't know as far as school goes what will happen. It is day by day at this point. Even if we have a match we don't know if they will have enough time to get all of the appropriate tests that are needed done before the scheduled surgeries, so what does this mean? Do we get pushed to October since they reserve only 1 live transplant surgery a month, or does someone already have that slot since we orginially were in September. Does this mean then if she gets pushed back to Ocotober or November for the transplant will she have to wait for the first surgery or will that still be done next week? I just wish everything was in order, it is driving me crazy not knowing. Dialysis is going well and Bridgette is eating like a horse now, even though she is not gaining weight, hopefully she will have a growth spurt. That is a whole other subject. We saw the ped. ortho doctor and he wants to start growth hormone therapy, just waiting as usual to hear from Boston before I start administering that daily shot. Thanks again for all the support everyone. We love you guys.
Megan and Mark