August 24th, 2009

Hi, we are in Boston today. We had to meet with the chief of nephrology, due to the fact that with more sensitive testing, they found an anitgen in Bridgette's blood that could possibly not work with mine. We came in today to discuss our options. They stated that before this test which became available 2 years, they would have automatically still gone with me as the donor, but this more sensitive test raises questions as to whether I am the perfect match for her. Bridge and I had to have blood drawn again today for even more sensitive testing, and this is either yes or no answer. We should know in about 1-2 days if I will continue on to be the donor. In the mean time I still had to meet with my adult nephrologist and they went over all my testing. They stated that they wanted to do an echocardiogram due to my chest xray showing a slighty enlarged aorta. They also wanted to due a fasting blood sugar as well as for me to monitor my blood pressure 2x a day for 1 week. My pressure is slighty high, 133/82 and they won't even consider me if they suspect high blood pressure. They want me in the 120/70 range instead. Bridgette just finished having spinal films and we are currently in dialysis, it is 12:35. We should finish around 3pm and then we go to meet with the pediatric ortho doctor to review her films and determine if she will start getting her growth hormone shots. Please everyone who reads this, pray extra hard these next couple of days to make sure that Bridge and I and all my tests come back + and that I am still the match, I don't know what we will do if I'm not, it will throw the transplant off if it doesn't work, so keep your fingers crossed.
Thank you,
Love Megan