Wednesday, July 22, 2009

July 22

Hi everybody! Bridgette is doing great. We are still having treatments every M/W/F. About 1/2 way through the treatments Bridge feels like she is going to be sick, but doesn't actually, so they are slowing up on the amount of fluid they are pulling off of her. She is still making urine so this is a very good thing since anything she puts out I can add to her daily intake. Bridge just went to a Pediatric endocronologist. These doctors deal with metabolism( thyroid, pancreas, growth, etc.) Bridgette is short in stature, so they want to start giving her daily growth hormone injections. They state that one of the side affects of end stage renal failure is short stature, but won't start this until after they talk with Boston. If we find a match they will wait until after the transplant takes place, if we don't find a match then they will begin. It will be a daily injection into her stomach. When Bridgette had an xray of her chest at her well visit they also discovered that she has developed scolosis. With the growth hormone shots this most likely, but not always, will worsen the scolosis, so she has to now go see a pediatric orthopaedic doctor to measure how severe the scolosis is. That is a whole other story, because with this they could possibly have to put rods in her back to correct it, but I'm not even going there at this point, hopefully a brace will be the answer. Bridgette and I our at the lake mostly, only back in VT 1 day a week. We want to thank everyone again for all the love and support that has been given to our family. We also want to thank everyone for organizing the benefit that is coming together for Bridge. It is very hard for Mark and I to ask for help, we are so used to making sure that everything is just right for everyone else and that our friends and family feel comfortable when they are with us. It is very out of the ordinary to need help and to except the help, but from the bottom of our hearts we are greatly moved and touched by all the love and support.
With much love,
Mark and Megan

1 comment:

  1. Hey you guys!
    Thanks for the update. Megan-I will call you after you get to Boston-I just want to make sure everything is okay. We will be in Bay Head next week but will be back next Sunday. You do not have to ask for anything. We are all here pulling for you and will do anything for all of you. Love you all very much. Give Bridge a big kiss and squeeze for me and Doogie.
    Love you!
    Murph

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