July 24, 2009

Hi everybody, dialysis is going well today, but we got a surprise when we came in. The endocronologist wants a MRI of Bridgette's brain, so we will hopefully be able to get that today. The doctor wants to see if she has a tumor on her pituary gland, her reason is because of the kidney disease and short stature combination. Hopefully there is no tumor or if there is one, it will be the kind that doesn't need to be treated. Unable to get an appointment with a pediatric orthopaedic doctor until the 15th of October, so they are trying to set up one when we go to Boston on the 28th. She needs to see this doctor about the degree of her scolosis. They want to start a growth hormone immediately which is common with renal failure, and they need to monitor this because the scolosis could possibly worsen with this medication. I believe everyone who is being tested has there kits already from Boston. Labs need to be drawn first thing Monday morning the 27th and then overnighted to Children's in Boston. If anyone hasn't received there kits, please call me. Bridgette wants to let everyone know that she is "hanging in there" and that she thanks everyone for all the love and support.
Thanks again, Love Megan and Mark