What can I say but ooh my god!! You guys are so amazing, everyone one of you. Mark and I, Bridgette and Matthew thank you from the bottom of our hearts. We heard that the event yesterday for Bridge was amazing. We heard that there was this huge energy, postive energy everywhere. Well that postive engery has found its way here because we moved 2 steps forward yesterday instead of 2 steps back. Bridgette has had such a rough recovery. We already explained that after surgery early the next morning she developed an ileus(bowels asleep, gas in the stomach), she had a tube placed from her nostril down into her stomach. With this tube in, Bridgette has been unable to eat or drink anything, so she hasn't had anything since Wed evening, at this point she has no appetite, we will find out later today if that tube can be pulled. Unfortunately also her right lung has partially collasped due to aspiration pneumonia, she was put on biPap which helps her breath and keep pressure in the lung to keep it open. They believe that she aspirated during intubation. For this they have put her on 3 anitobotics, vanco, clindaymycin and cipro. Because of this you guessed it, she has developed a yeast infection. They also had to put a central line in, which they placed in her femoral vein(right groin area). The first try they actual put it her artery so they decided since they were in the wrong spot, they would put in a aterial pressure line where they could continuously monitor her blood pressure. This was a very traumatic experience for all of us, we were right there in the room and had to help hold down, even with medications on board, she still knew what was going on>>>PAIN. Needless to say that we went from thinking that possibly we could go home on Saturday to thinking when or if she would come home it was so scary. Today, Monday the 12th she has turned a corner. One of her lines was taken out and she was taken off of the biPap. She is now currently on a nasal canula and oxygen level is good. Her blood pressure is still low, she is off the dopamine drip but is still on the noriephrine drip which helps increase her blood pressure which is running very low. Instead of receiving dilaysis 3x a week, she was started on Sunday and will be getting gentle dialyis everyday, so as to not upset her hemostasis. They currently have her in a good place, meaning that she is moving in the forward direction. Bridgette is also receiving physical therapy where they come and pound on her chest and back(literally) to help loosen the consoldation in her right lung, this has helped a lot. Everyone is amazing here. They really are caring and know their stuff, this is the place to be for kids. We got Bridge up to a chair today for 30 minutes which was great, but his completely wiped her out. I think we will be in ICU for 1 more night and if things go well they will move us to a regular floor tommorrow, where I believe we will be there for 2-3 days, so hopefully we will be home by Friday. Thank you again everyone for all the love and good vibes we are feeling here in Boston.
Love to all, Megan, Mark and Miss Bridge
P.S. Since of the complications, the transplant is no longer the 22nd of this month, hopefully it will happen possibly the 3rd of November, and we don't even know if we have a match yet, if we don't then I don't know what we will do next, we'll cross that another day
XO